news 2022

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Title Modified Date Hits
World Thrombosis Day 2022 16 December 2022 18899
Rare Vascular Diseases (VASCERN) 02 December 2022 19053
Launch of European Genomic Data Infrastructure 02 December 2022 19076
Together4RD 18 November 2022 19341
RDDC & NORD announce partnershi 02 November 2022 19917
Orphanet Data for Rare Disease (OD4RD) 20 October 2022 19810
Conference on Clinical Research Networks for Rare Diseases 17 October 2022 20690
International Congress Of Research On Rare and Orphan Diseases 15 September 2022 20704
European Health Data Space 15 September 2022 16223
ISLH Annual Meeting Bologna 08 September 2022 20443
ERICA: Customisable template documents for ERN registries 10 August 2022 20387
ISTH: Flora Peyvandi President 2022-2024 20 July 2022 20714
Global Survey on Rare Disease Diagnosis 21 June 2022 22650
rare diseases in China 13 May 2022 22100
ERN EuroBloodNet ERICA WP3 project 30 March 2022 21808
ECRD 2022: submissions extended 30 March 2022 21547
ModelMatcher 29 March 2022 21474
ERN Eurobloodnet 17 March 2022 21378
ERNs and EJP RD Workshop 17 March 2022 21316
ISTH 2022 10 March 2022 21675
ecrd 22 10 March 2022 17399
Rare Disease Day at the World Expo 10 February 2022 17438
10th UDNI Conference 19 January 2022 22570
China's Rare Diseases Registry 19 January 2022 21200
severe haemophilia B 19 January 2022 21225
Prisms '22 10 March 2022 17583
ECRD 2022 17 November 2021 21897
From Rare to Care 17 November 2021 21691
Screen4Care 16 December 2021 29112
New Zealand: Ministry of Health not to proceed with a rare disorder national framework 21 October 2021 16646
ICIC22 Odense, Denmark – 2022 16 December 2021 25620