news 2023

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Title Modified Date Hits
Registries Symposium 2024 09 January 2024 10115
Artificial intelligence and rare diseases 30 November 2023 10191
Neurological Complications Associated with Hereditary Bleeding Disorders 26 October 2023 10243
A creative approach to managing a case of haemophilia A 26 October 2023 10155
ISTH draft hemophilia guideline 23 October 2023 10320
CHESS II study 16 October 2023 10280
Accessibility of services for neuromuscular disorders in Zambia 16 October 2023 10072
CDISC Data Standards for Rare Disease 12 October 2023 10211
2023 NORD Breakthrough Summit 12 October 2023 10241
ERN 5th Progress Meeting 29 September 2023 10272
Bleeding patients on extracorporeal membrane oxygenation 25 September 2023 10221
12 BIC Palermo 11 September 2023 14745
State of the art for ISTH Society 28 June 2023 15368
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases 23 June 2023 15237
Diagnosis of von Willebrand disease 01 June 2023 15705
Innovative Health Initiative 16 May 2023 16051
US: The future of market exclusivity 16 May 2023 16626
solve-rd 16 May 2023 15980
12 BIC International Conference 11 September 2023 16794
Online registry building: Guidance for patient organisations 28 April 2023 16651
Australia: Moving towards a more sustainable rare disease workforce 28 April 2023 16603
ERN-EuroBloodNet: New online educational program 28 April 2023 16335
EuroBloodNet: Sickle Cell Disease research 28 April 2023 12970
ISTH 2023 Montreal 13 April 2023 17967
haemophilia: a breakthrough drug with many unknowns 05 April 2023 17853
von Willebrand factor 05 April 2023 17817
research priorities for ultra-rare inherited bleeding disorders 18 March 2023 18012
costs of rare diseases in Hong Kong 15 March 2023 18534
EuroBloodNet 15 March 2023 18198
ERKNet: New patient website 15 March 2023 17996
COVID-19 and coagulopathy 13 March 2023 17999
Rare Disease Day 2023 28 February 2023 18817
Care4Rare Canada 15 February 2023 18407
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs 14 February 2023 17950
Hemorrhagic and thrombotic adverse events associated with emicizumab 01 February 2023 18119
Involvement of the contact pathway in COVID-19 coagulopathy 04 January 2023 18650
ISTH Bangkok 2024 27 April 2023 19235
EAHAD 2023 16 December 2022 19112
EJP RD: New video on rare diseases for ASHG TV 02 November 2022 15053
RDDC & NORD announce new partnership 02 November 2022 12025