Since 1996 the IRCCS Foundation Maggiore Hospital, Mangiagalli, Regina Elena (http://www.policlinico.mi.it/), Luigi Villa Foundation (www.fondazioneluigivilla.org), Angelo Bianchi Bonomi Haemophilia and Thrombosis Centre (http://www.bianchibonomi-htcenter.it/), and University of Milan (http://www.unimi.it/) have been collecting information and developing international collaborations across the RBDs network, becoming an International reference point. In the last ten years we have investigated more than 400 patients with RBDs from a variety of countries. These studies have allowed us to collect a considerable amount of clinical, laboratory and treatment data. By continuing collaboration with different international centres we aim to further extend the knowledge of RBDs and this collaboration gives a platform to focus and develop further diagnostic and therapeutic research activity. In order to readily access and exchange information on these, and all aspects of RBDs we have developed an on-line database of rare bleeding disorders. This aim of the database is to exchange the knowledge and experience of different Centres through the collaboration and the collection of data in the Registry.
Team Leader RBDD: Flora Peyvandi, MD, PhD
Molecular biology laboratory, Luigi Villa Foundation
phone +39 02 55 03 54 14 (Laboratory)
Monday to Friday from 9:30 AM to 5:00 PM