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1 |
World Orphan Drug Congress Asia
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Tuesday, 14 May 2013 |
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2 |
IRDiRC
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Tuesday, 14 May 2013 |
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3 |
The 1st radiz Rare Diseases Summer School
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Tuesday, 14 May 2013 |
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4 |
Mitoseek: extraction of DNA information
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Tuesday, 09 April 2013 |
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5 |
Australian process for subsidised access to orphan drugs.
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Tuesday, 09 April 2013 |
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6 |
I look for zebras
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Tuesday, 09 April 2013 |
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7 |
Immune thrombocytopenic purpura
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Saturday, 16 March 2013 |
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8 |
amyotrophic lateral sclerosis (ALS) - registry Swabia
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Saturday, 16 March 2013 |
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9 |
rare disease alliance in China
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Saturday, 16 March 2013 |
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10 |
International Rare Disease Research Consortium
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Thursday, 28 February 2013 |
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11 |
EU Policy News
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Thursday, 21 February 2013 |
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12 |
EUCERD - European Reference Networks for Rare Diseases
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Thursday, 21 February 2013 |
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13 |
Italian National Plan on rare diseases drafted
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Thursday, 21 February 2013 |
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14 |
Japan reforms policy on rare disease subsidies
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Thursday, 21 February 2013 |
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15 |
Korean rare disease knowledge base launched
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Thursday, 21 February 2013 |
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16 |
Rare Disease Day 2013
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Tuesday, 29 January 2013 |
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17 |
EURORDIS patient survey on rare disease registries
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Tuesday, 29 January 2013 |
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18 |
Spanish Year of Rare Diseases
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Thursday, 22 November 2012 |
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19 |
EUHANET
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Monday, 12 November 2012 |
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20 |
Congenital factor XIII deficiency
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Wednesday, 17 October 2012 |
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21 |
patient care and research in Germany
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Wednesday, 17 October 2012 |
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22 |
esh e-learning
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Tuesday, 18 September 2012 |
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23 |
Registries and Data Management
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Tuesday, 18 September 2012 |
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24 |
EUCERD 2012
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Tuesday, 18 September 2012 |
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25 |
annual EUCERD report
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Sunday, 29 July 2012 |
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26 |
Researchers seek better understanding of blood disorders
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Sunday, 29 July 2012 |
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27 |
New Europe for patients website online
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Sunday, 29 July 2012 |
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28 |
WFH 2012
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Wednesday, 04 July 2012 |
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29 |
rare disease India
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Wednesday, 04 July 2012 |
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30 |
Pro Rare Austria
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Wednesday, 04 July 2012 |
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31 |
European School of Haematology
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Wednesday, 20 June 2012 |
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32 |
general information for patients: Serbian version
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Monday, 04 June 2012 |
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33 |
EU health wiki
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Wednesday, 23 May 2012 |
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34 |
New Orleans, Louisiana - rbd update
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Sunday, 13 May 2012 |
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35 |
rbdd videoclip
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Monday, 23 April 2012 |
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36 |
Lovd Leiden Open Variation Database
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Wednesday, 18 April 2012 |
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37 |
Incidental Findings (IFs)
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Wednesday, 18 April 2012 |
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38 |
Global Rare Diseases Patient Registry
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Wednesday, 28 March 2012 |
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39 |
Rare disease registries article
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Wednesday, 14 March 2012 |
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40 |
RBD's as a model
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Wednesday, 08 February 2012 |
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41 |
ProRaris Switzerland
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Friday, 03 February 2012 |
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42 |
RE(ACT) CONGRESS 2012
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Friday, 03 February 2012 |
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43 |
7th ICORD Tokyo
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Thursday, 05 January 2012 |
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44 |
Rare Disease Day 2012
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Tuesday, 03 January 2012 |
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45 |
Video on rare diseases
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Thursday, 10 November 2011 |
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46 |
Rare Diseases Conference 2011
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Thursday, 27 October 2011 |
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47 |
ERCD 2012
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Saturday, 15 October 2011 |
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48 |
6th Eastern European Conference for Rare Diseases
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Saturday, 15 October 2011 |
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49 |
People living with rare diseases ask for plans
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Friday, 30 September 2011 |
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50 |
Learning from each other across Europe
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Friday, 30 September 2011 |
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51 |
Rare disease events in Europe
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Friday, 30 September 2011 |
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52 |
International Rare Disease Research Consortium (IRDiRC)
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Saturday, 18 June 2011 |
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53 |
Rare Disease Research Consortium
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Tuesday, 19 April 2011 |
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54 |
Patients: general RBD's Info
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Monday, 04 April 2011 |
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55 |
Kyoto, Japan Update
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Tuesday, 22 March 2011 |
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56 |
Eurobarometer: Rare disease awareness
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Tuesday, 22 March 2011 |
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57 |
Rare Disease Day 2011
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Monday, 24 January 2011 |
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58 |
Many Faces of Bleeding Disorders
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Monday, 03 January 2011 |
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59 |
EHA 2010 Barcelona
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Tuesday, 20 July 2010 |
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60 |
Hemophilia 2010 Congress
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Tuesday, 06 July 2010 |
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61 |
21st International Congress on Thrombosis 2010
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Tuesday, 06 July 2010 |
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62 |
Patients and Researchers: Partners for Life!
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Friday, 02 July 2010 |
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63 |
Bleeding Scores in RBDs
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Wednesday, 02 June 2010 |
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64 |
ISTH 2010
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Monday, 31 May 2010 |
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65 |
HoNCode
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Thursday, 27 May 2010 |
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66 |
Rare Disease International Congress
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Monday, 15 March 2010 |
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67 |
3nd Annual Congress EAHAD
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Wednesday, 10 March 2010 |
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68 |
RARE DISEASES AND ORPHAN DRUGS
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Wednesday, 10 March 2010 |
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69 |
Report on Women's Health in the EU
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Thursday, 28 January 2010 |
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70 |
en-rbd workshop Athen
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Tuesday, 19 January 2010 |
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71 |
EN-RBD database 2.0
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Wednesday, 21 October 2009 |
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72 |
EHA Congress 2009
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Wednesday, 22 July 2009 |
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73 |
SSC Working group
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Wednesday, 22 July 2009 |
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74 |
ISTH 2009
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Friday, 17 July 2009 |
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75 |
rare diseases and orphan drugs in Taiwan
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Friday, 10 July 2009 |
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76 |
E.C. Recommendation on Rare Diseases
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Wednesday, 01 July 2009 |
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77 |
Optimal Clinical Use of Blood Components
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Tuesday, 26 May 2009 |
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78 |
Rare diseases: an invisible threat
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Friday, 08 May 2009 |
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79 |
Danubian League Against Thrombosis and Haemorrhagic Disorders
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Tuesday, 05 May 2009 |
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80 |
EAHAD Congress
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Thursday, 26 March 2009 |
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81 |
EPPOSI Workshop
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Saturday, 14 March 2009 |
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82 |
Rare Disease Day 2009
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Wednesday, 18 February 2009 |
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83 |
Rare Diseases and Disabilities
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Thursday, 12 February 2009 |
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84 |
European Network of RBDs
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Monday, 02 February 2009 |
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85 |
old web-site
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Monday, 02 February 2009 |
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86 |
news archive 07
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Tuesday, 25 March 2008 |
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87 |
news archive 08
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Sunday, 25 March 2007 |
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