In order to create an International collaboration on Rare Bleeding Disorders, during the ASH Meeting in Atlanta (December 2005), the first Steering Committee of RBDD was organized, where the actual and future perspective of the RBDD were discussed.
The persons present at this meeting were:

-	Jean Donadieu: Institut de veille sanitaire, Unité Maladies Rares / France Coag, Département Maladies Chroniques et Traumatismes, Saint Maurice, France
-	Bruce Evatt: Hematologic Diseases Branch of the U.S. Centers for Disease Control and Prevention, Atlanta (GA), USA
-	Marion Koerper: Department of Pediatric Hematology, University of California at San Francisco (CA), USA
-	Uri Seligshon: The Amalia Biron Research, Institute of Thrombosis & Hemostasis, Sheba Medical Center, Tel-Hashomer, ISRAEL
-	Amy D Shapiro: Medical Director, Indiana Hemophilia & Thrombosis Center, Indianapolis (IN), USA
-	Michael Soucie: Centers for Disease Control and Prevention, Hematologic Diseases Branch, Atlanta (GA), USA
-	Flora Peyvandi: Angelo Bianchi Bonomi Hemofilia and Thrombosis Center, University of Milan, and Department of Medicine and Medical Specialities, IRCCS Maggiore Hospital, Mangiagalli and Regina Elena Foundation, Luigi Villa Foundation, Milan, ITALY

All discussed topics are reported in the minute.
The Steering Committee will meet again at the Hemophilia 2006, World Congress, Vancouver, Canada, May 21 to 25, 2006.